Fibromylga

PTBO52
PTBO52: My friend who moved out to BC was diagnosed finally with this disease. It took along time to arrive at the diagnoses. Does anyone know how long this has beenaround? Is it an autoimune problem? Are there genetic
links?
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PTBO52
PTBO52: Thanks Joshk!
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mayjayran
mayjayran: I have Fibromyalgia-anyone else out there havei & if so how do you deal with it?
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ApathyAngel
ApathyAngel: almost all my best friends have it probably because they always overwork themselves.

There's a lot of ways to cope with it

Massage, Epsom salts, facial creams, vitamins, minerals, you pretty much need to do just about everything possible to take care of your body but what really helps is getting your affairs in order... if you need to work 4 jobs no magic elixir in the world can help you.

However I keep hearing great results with something called "Willard Water"... look it up.
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mayjayran
mayjayran: thanks will look it up. I only work PT-haven't been able to work FT for 7 yrs. Believe me have tried most everything-it's the lack of sleep tha's killing me & the chronic pain. Plus & have arthritis. I hate it-really hate it
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otcclass
otcclass: Yes.. My husband has this awful disease... He puts up with the pain every day due to the fact the the pain pills he was taking was affecting how he was thinking and he did not like that one bit so he just puts up with the pain.
I believe him to be very courageous because he does put up with the pain. I believe that anyone that puts up with the pain is very courageous.
As far as what the doctors have told my husband there is no cure for this disease (at least not for the type he has).

Apathy:
Thanks for the list of ways to deal with it but none of them would work on my husband.. The only thing that seems to even somewhat relieve the pain even for a few minutes is a very, very hot bath (or at least as hot has he can stand it) and warm weather. That is why we are moving down to AZ
"Willard Water": Historically used as a cure-all or panacea, however there are no proven pharmacological effects of Willard Water . In the past, it has been used as an industrial cleanser. The FDA does not recognize Willard Water as safe or effective
http://www.drugs.com/npp/willard-water.html

Mary....
Wish you best of luck with handling yours
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mayjayran
mayjayran: gabapentin-used to control seizures in epilepsy-now also used for nerve damage-possible cause of fibro-use it-no side effects & helps
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mayjayran
mayjayran: Fibromyalgia usually shows up after 50 & after a trauma of some kind. 90%of sufferers are woman-10% men. Possibility hereditary. No cure-they don't really know to much about it as there aren't tests for it. Diagnose by rheumatologist
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otcclass
otcclass: mary:
Thanks for the info and when my husband can get some money to see a doctor we will look into this pain medicine. Just hope that it don't affect him like all the rest has by making him not think clearly.
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vanderk86
vanderk86: It's all in your mind.
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mayjayran
mayjayran: to Van-it's all in my mind is it. BS u don't know what u r talking about. Ru a doctor? Otherwise don;t talk about something u have no ides about FO!
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otcclass
otcclass: Vanderk:
Well, the brain is what sends the messages to all the different parts of the body so you are some what right but the actual pain receptors are in the spine..
So what you should have said is it is all in your mind and your spine... *lol*

Mary:
Yes... I do agree with what you are saying. I totally do..
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mayjayran
mayjayran: Fibromyalgia is caused by a trauma suffered. There is a pain gate in the brain that tells u to react to pain-in fibro patients the gate never shuts-hence brain tells u that you r in pain-hence chronic pain. Pain wears u down-hence chronic fatigue. Believe me wish i didn't have it. Saps the life right out of u. People that have no idea what they r talking about should keep their opinions to themselves.
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otcclass
otcclass: Mary:
true..just like in my husband's cause the trauma that was caused by the blood clots that was all through out his legs.
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vanderk86
vanderk86: Fibromyalgia patients want an excuse for medical marijuana and oxy.
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otcclass
otcclass: vanderk86:
That is the last thing my husband wants.. he just wants the pain to go away.... is that so much to ask???
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vanderk86
vanderk86: Meditation, Tai Chi & Yoga. With regular routine, his pain will subside. Mind over matter. This is precisely why placebos work on the majority of the population.
Have you husband take this.
1.Magnesium
2.Vitamin D
3.S-adenosylmethionine (SAMe)is compound that occurs naturally in the body. It is needed for proper immune function, it helps maintain cell membranes, it assists in the production and breakdown of neurotransmitters such as serotonin, norepinephrine, and dopamine.

Stay Away From ---->5-hydroxytryptophan (5-HTP)
Although this will increase levels of the neurotransmitter serotonin in the brain, eventually... the brain will fail to produce serotonin naturally. This can lead to Parkinson's and ALzheimer's "like" symptoms.

I am NOT a Medical Doctor. This is just friendly personal advice. Please consult your regular moron physician before taking any of this.
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otcclass
otcclass: vanderk86
you never had fibro so you know not what you talk about

what you describe will help for ordinary pain or maybe even migraines but not fibro
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vanderk86
vanderk86: lol. Some people... Don't deserve my time.
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otcclass
otcclass: vanderk86:
Please don't come off sounding like you know it all and that this pain from fibro is all in people's head. I don't have it myself but my husband does and I know for a fact that he is not faking and that he would do anything (almost) to get rid of the pain. He has even considered asking the doctors to sever the pain receptors in his spine so he does not feel anything. Now would a person that is not REALLY in pain wish to do something that drastic???
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vanderk86
vanderk86: I'm not saying he does not "feel" pain. It's still all in the mind. He could imagine... his pain as pleasure. If he has a weak mind... this will not work.

en.wikipedia.org/wiki/Sadism_and_masochism_as_medical_terms
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otcclass
otcclass: vanderk86:
You don't know my husband.... please don't talk like you do or that you know what he is going through.
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vanderk86
vanderk86: Oh sorry, I thought you were looking for sound advice. You really just wanted to whine... I'll leave you to it.
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otcclass
otcclass: vanderk86
I am looking for some sound advice, yes, not something that wont even help a migraine more then likely.
Where did you get you doctorate to talk about medicine anyways????
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vanderk86
vanderk86: ("I am NOT a Medical Doctor. This is just friendly personal advice. Please consult your regular moron physician before taking any of this." -Page 2)

If I have a stupid child, I might encourage him to become a Medical Doctor.
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